53 years old （As of March 2019 interview）
Year of birth:
Place of residence:
Relatives living together:
Formerly in printing and publishing
Age of onset:
About 46 years old
Age of diagnosis:
51 years old
Frontotemporal lobar degeneration (behavioral variant dementia)
Frequency of gatherings with other people with dementia:
Group events for people with juvenile dementia; about twice per month
Home meals and children's cafeteria organized by Chiiki (Local) Living in Itabashi Ward, Tokyo
Having noticed my mistakes and changes in my language, colleagues at work recommended that I consult a doctor.
I was diagnosed with depression and took a six-month leave of absence.
I returned to work, and colleagues pointed out my mistakes. My supervisor told me that my depression had gotten worse than before.
I consulted a psychiatrist and asked for an examination of my brain. An MRI scan revealed large holes in my left and right brains in the facial view. I was diagnosed with Alzheimer's disease.
Because Alzheimer's disease was not understood as "dementia" at the company, I continued working in the same way for about two years.
My supervisor pointed out that I was making more mistakes and that my condition was getting worse again.
I told the psychiatrist that I would like to know what was wrong with my brain, and, after an isotope examination, I was diagnosed with dementia. I received a medical certificate stating that my symptoms were irreversible and that the prognosis would be poor.
When I submitted the medical certificate as requested by the company, I was told to resign; I was not able to go out for a while.
I moved to Itabashi Ward.
I looked for a job while receiving sickness and injury benefits, but there were no openings. Even when I made it to interviews, there were few openings, and I was assigned to those handling applicants with mental disabilities. The process was time-consuming. I gave up on finding a job and applied for welfare.
A public health nurse in the ward where I used to live made various arrangements for me. When I moved, the nurse contacted a public health nurse of Itabashi Ward, which I was moving into, and asked to visit me. That was how the public health nurse of Itabashi Ward visited me. After I talked with the nurse several times, I told that I would like to know how others with the same disease live and that I would like to speak with them. Then the public health nurse brought me a pamphlet of a group of people with juvenile dementia. I contacted the representative of the group and talked for about an hour.
I joined a BBQ organized by the group and talked with those with the disease, supporters and doctors. For the first time in three years, I was able to smile and have a good time. With the support of the group, I helped out with Chiiki Living activities and cooked meals (as a volunteer), making use of my specialty of cooking.
I transferred to the Psychiatry Department of the Tokyo Metropolitan Geriatric Medical Center near Oyama Station in Itabashi Ward. I was examined by the doctor all over again and underwent an MRI scan, an isotope examination and a psychological examination. Subsequently, I stayed at the hospital for a night for an examination involving an bone marrow fluid extraction. In December, I was diagnosed with frontotemporal lobar degeneration.
My doctor told me that I was eligible for the intractable disease benefits because my disease was designated as an intractable disease. I applied for the benefits.
I am currently switching to the disability support system from the insurance services that I had been using until May.
A lawyer who I met at the juvenile dementia group became my legal guardian. I am receiving welfare, disability pension, and the intractable disease benefits and having my caseworker and the lawyer who is my adult guardian manage my finances.
Joy in life and living
Joy that you have given up
Talking with various people at drinking parties
Joy that has come to you after onset
Participating in Chiiki Living, children's cafeteria and the monthly drinking get-together organized by Ponte (group of people with dementia)
Joy that has come to you after onset
Raising society's awareness of frontotemporal lobar degeneration (behavioral variant dementia) and of those who are living alone with dementia
Something you would like to do in the future
I want to open a restaurant with people with dementia in Itabashi Ward and create a place where many people can cook and feel happy.
Challenges in daily living
11 Areas of Daily LivingDaily Living ChallengeDATAthe Mental or Physical DysfunctionKnowledge
I think I have picked up the right combination of socks, but the colors are different.
I can no longer live in a house with enough space for washing dishes because I am on welfare.
The owner of the property found out that I have dementia and refuse to renew the lease.
I cannot remember what day of the week I take out the trash.
People in the community do not tell me where to put out the garbage.
I look for things because I do not know where I put what.
The ward office does not tell me why I cannot apply for the nursing care insurance and only tells me to go home and consult a caseworker.
I sometimes get emotional and cry. I have ups and downs of emotions and moods.
I feel fatigued.
Left side of the body feels stiff.
I cannot sleep at night.
I do not cook at home any more because I retired early and no longer have opportunities to offer meals to people from work.
There is no place in the community where I can meet people close to my age.
Colleagues keep blaming me for the mistakes that I make at work.
I cannot find a job because there are no jobs available for people with dementia.
I fail to correct more errors when I am proofreading at work.
Physical and mental dysfunctions
Message to the society
Frontotemporal lobe degeneration (behavioral variant dementia, semantic dementia) is an intractable form of dementia, and I would like people to know about this disease for which there is no cure and no treatment method.
Although people with dementia most often live with family, I would like people to turn their eyes to those with dementia who are living alone, too.
I would also like people to understand that, even with the same disease, people with dementia take different medications and have different symptoms. Due to differences in family structures and other elements, 100 people are unique in 100 different ways, and 10 million people in 10 million different ways.