Masahiko Sato

Masahiko Sato

Age:

65 years old (As of November 2018 interview)

Year of birth:

May 10th, 1954

Place of residence:

Kawaguchi City, Saitama Prefecture

Relatives living together:

Residing in a facility (care house)

Occupation:

Former system engineer at a telecommunications company / current board member of the Japan Dementia Working Group

Age of onset:

About 45 years old

Age of diagnosis:

51 years old

Diagnosis:

Alzheimer type

Dementia rating scale?Mini-Mental State Examination(MMSE)
The most widely used screening test internationally for identifying dementia, in which questions are asked directly to subjects. The MMSE assesses cognitive functions with a series of questions/tasks related to orientation, memory, attention and calculation, language, giving commands and copying a picture. The test yields the highest score of 30 points, and, in general, those who score 23 points or lower are identified as suspected patients with dementia.Revised Hasegawa's Dementia Scale (HDS-R)
A screening test widely used in Japan for identifying dementia, in which questions are asked directly to subjects. It has 9 questions/tasks related to age, orientation, immediate memory and delayed recall of 3 words, calculation, backward digit span, memory of 5 objects and language fluency. The test yields the highest score of 30 points, and, in general, those who score 20 points or lower are identified as suspected patients with dementia.
:

MMSE 28About

Using long-term care insurance:

Uses day services twice a month

Frequency of gatherings with other people with dementia:

Participates in meetings for people with dementia once a month

Past experiences

1987年(33)

I worked as a system engineer and became the director of a management association in my community. I was enjoying a fulfilling work and private life.
I frequently visited the hospital due to tinnitus and unstable mental condition. After receiving a diagnosis that the symptoms were caused by overwork, I went to my parents' house to rest and recuperate. I subsequently returned to work but then took a leave of absence.

1989年(35)

I returned to work again, but was reassigned to a clerical position and lost my motivation to work.

1994年(40)

Seeking a purpose for life, I was baptized and became a Christian. Through activities such as volunteer work, I found joy in my life despite my worries about work.

1999年(45)

Noticing that I was making more mistakes at work, for example not being able to write meeting minutes well, I went to the hospital but was diagnosed as "nothing wrong." I continued to work but had a mental health problem. I took a leave of absence.

2002年(48)

I returned to work. I continued to work as a delivery clerk.

Diagnosis

2005年(51)

I lost confidence in my work because I was making mistakes such as leaving a cart at a delivery destination and being unsure that I had delivered the goods. I visited the hospital again, had a CT scan of the brain and was diagnosed with juvenile Alzheimer's dementia.

2006年(52)

After receiving the diagnosis, I took a sick leave. However, I resigned from work because I felt that I could no longer continue working. I lived a hellish life in despair.

2007年(53)

Hoping to continue living by myself, I was trying to find new ways of living and go out as much as possible. Then I met "Saisei no Kai," a family group for young people with dementia, which led me to meet a variety of supporters.
I started to give lectures about my own experiences of living with dementia.

2012年(58)

I served as the president of "Mittsu no Kai," an association for people with dementia.

2014年(60)

I founded and became a co-chair of the Japan Dementia Working Group.
I published "What I Want to Tell You as I Live with Dementia" (Otsuki Shoten). I later received an award for excellence from the Medical Journalists Association of Japan.

2017年(63)

At the 32nd International Conference of the Alzheimer's Disease International (ADI), I made a presentation as a co-chair of the Japan Dementia Working Group.
I founded and became the president of the "Association of Individuals Living with Dementia."

2019年(65)

I held an event called the "Piano & Talk Event to Commemorate the 15th Anniversary of Masahiko Sato's Dementia Diagnosis and the 20th Anniversary of His Onset of the Disease."

Publication, links, etc.

Website|Masahiko Sato Official Web Site LINK

Publication|『認知症になった私が伝えたいこと (What I Want to Tell You as I Live with Dementia)』
Publisher: 大月書店 (Otsuki Shoten)Year of Publication: 2014年 LINK

Joy in life and living

1

Joy that has come to you after onset

Painting, taking photographs, holding solo exhibitions (I gained inspiration from clinical art.)

2

Joy that has come to you after onset

Playing the piano

3

Joy that has come to you after onset

Dyeing with mountain harvest dyeing

4

Joy that has come to you after onset

Updating social networking sites

5

Joy that remains with you even after onset

Praising God in church and praising Him in the choir

Something you would like to do in the future

I would like to organize a piano recital for the 15th anniversary of my dementia.

Challenges in daily living

Physical and mental dysfunctions

Message to the society

My desire is to dispel the misconception that people with dementia are incapable of thinking, doing anything or making decisions. If we break out of the shell of common sense that we ourselves create and look forward, we can, in fact, do things if we want to. Accepting ourselves as we are, continuing to cherish our lives by making the most of our abilities, enjoying and challenging ourselves as members of the society, and believing in our own abilities. We, individuals living with dementia, meet, connect, encourage each other to have the power for life, and live energetically. When we can no longer do certain things by ourselves, we find people around us who are willing to be our allies and walk with us as we share our thoughts and hopes with them. I believe showing that people with dementia live actively and energetically will be a path to solving misconceptions.