K.S

Age:

67 years old （As of March 2019 interview）

Year of birth:

1951

Place of residence:

Itabashi Ward, Tokyo

Relatives living together:

Lives with wife and children

Occupation:

Formerly in research and advertising in a cosmetics company

Age of onset:

64 years old

Diagnosis:

Frontotemporal

Using long-term care insurance:

Day service (muscle training and physical therapy; twice per week), care manager visit (once per month)

Frequency of gatherings with other people with dementia:

Attending a gathering of people with the disease (once per month)

Past experiences

2015年（64）

Although I was not aware, my wife told me that I was acting strangely (avoiding going out and staying home all the time, not taking a bath, etc.)

I had a dangerous experience while driving a car.

2015年（64）

I immediately consulted my family doctor and was referred to a psychosomatic clinic and a neurosurgical hospital.

The former was using the Hasegawa method, and the latter advised me to take an examination test, but I refused. I was admitted to a hospital to be examined in my sleep.

Diagnosis

2015年（64）

Based on their results, I was referred to the neurology department of a larger hospital and was finally diagnosed with dementia at the fourth medical institution.

2015年（64）

I felt depleted immediately after the diagnosis. I did not want to do anything, including going out.

2015年（64）

I received government employee and company pensions after my retirement.

I am connected with and a juvenile dementia group and now enjoys being part of it.

Joy in life and living

1

Joy that remains with you even after onset

Traveling and visiting hot springs

2

Joy that has come to you after onset

Joining a drinking party once a month

3

Joy that remains with you even after onset

Collecting stamps and coins

Something you would like to do in the future

I would like to obtain an antique dealer's license and open a coin store with my friends. I want to do some farming work.

Challenges in daily living

WEAR

EAT

RESIDE

BUDGET

BUY

CARE

MOVE

SOCIALIZE

PLAY

Joy

1 3

STUDY

Joy

2

WORK

Physical and mental dysfunctions

What you see/hear immediately disappears from memory
What pops into your head immediately disappears from memory
Cannot process more than one thing that you see/hear simultaneously
Cannot retain/recall your own behavior, experiences, and habits
Cannot retain/recall your plans and schedule
Cannot retain/recall places and landmarks
Cannot retain/recall numbers and symbols
Cannot retain/recall proper nouns
Cannot recall everyday words that you have used often
Cannot retain/recall names of people
Cannot retain/recall faces of people
Cannot recall processes and procedures to accomplish things
Recall erroneous memories (mix up memories)
Cannot recall letters and sentences
Cannot perform more than one thing simultaneously
Mix things up if you try to do more than one thing simultaneously
Cannot integrate/process more than one piece of information
Cannot perform simple calculations
Cannot turn thoughts into actions
Cannot sense or operate one's own body
Cannot write neatly
Small changes prevent you from completing familiar actions
Be restless and talkative/hyperverbal
Your hands and body move impulsively
Take unintended actions
Cannot recognize shapes and sizes correctly
Cannot distinguish colors
Have a constricted or narrow visual field
Cannot recognize faces of people correctly
See faces of people in various things
Feel as if you are seeing things that should not be there
Stationary objects appear to be in motion
Visually misperceive things
Have sensitive sight, hearing, and smell
Cannot pay attention to sounds that you need to listen to
Catch only part of what you hear
Feel as if you are hearing sounds that should not be there
No sense of smell
Feel as if you are sensing smells that should not be there
Have altered skin sensations
Feel stimulation and pain that do not exist
Have decreased sense of taste
Cannot associate when with what
Your sense of time does not match actual time
Lost sense of clock time
Cannot tell dates and days of the week
Have altered sense of speed
Cannot tell distance
Cannot tell depth
Cannot tell directions or loss of spatial orientation
Cannot associate plane with space
Space appears to be distorted
Become easily fatigued, mentally and physically
Cannot regulate body temperature and sweating
Have headaches
Cannot regulate blood pressure
Cannot sleep
Cannot adjust to seasonal changes
Be quick to assume/worry too much
Be depressed/anxious
Feel frustrated/quick to anger
Have poor vision in the dark
Be preoccupied with/fixated on certain things
Lose sense of balance

Message to the society

Above all, early detection is the key with dementia.
Working with medical professionals, society, my family, and close relatives, I would like to maintain my current status or even make improvements.