Tetsuyuki Nakata

Tetsuyuki Nakata

Age:

58 years old (As of October 2018)

Year of birth:

1960

Relatives living together:

Lives with wife and two children

Occupation:

Former employee of a pharmaceutical company

Age of onset:

About 54 years old

Age of diagnosis:

55 years old

Diagnosis:

Basal ganglia degeneration of the cerebral cortex

Dementia rating scale?Mini-Mental State Examination(MMSE)
The most widely used screening test internationally for identifying dementia, in which questions are asked directly to subjects. The MMSE assesses cognitive functions with a series of questions/tasks related to orientation, memory, attention and calculation, language, giving commands and copying a picture. The test yields the highest score of 30 points, and, in general, those who score 23 points or lower are identified as suspected patients with dementia.Revised Hasegawa's Dementia Scale (HDS-R)
A screening test widely used in Japan for identifying dementia, in which questions are asked directly to subjects. It has 9 questions/tasks related to age, orientation, immediate memory and delayed recall of 3 words, calculation, backward digit span, memory of 5 objects and language fluency. The test yields the highest score of 30 points, and, in general, those who score 20 points or lower are identified as suspected patients with dementia.
:

MMSE 29About (As of March 2015)

Using long-term care insurance:

Rehabilitation by speech therapist at home 4 times a month
Care manager visits once a month

Frequency of gatherings with other people with dementia:

Visits day service facilities in other areas 2-3 times a month

Past experiences

2013年(53)

My wife was concerned that I was forgetting things at work and recommended that I go to the hospital, but I stayed away because I did not want to go.

2014年(54)

At my mother's funeral, I was in a daze, not knowing what to do, and a relative who was a nurse saw me and recommended that I visit the hospital. I visited a hospital because an expert recommended to do so, but the hospital was not able to confirm details. Then it was decided that I go to a university hospital to have tested again.

Diagnosis

2015年(55)

I was diagnosed with Alzheimer's dementia at the university hospital.
At an internal presentation for which I had prepared properly, I was not able to tell what to say. I became worried that the disease would progress in the future.
Because I was surrounded only by my subordinates, I could not consult anyone. My manager offered to provide me with retirement benefits earlier.

2016年(56)

I resigned from work.
Hoping to find a job, I started job searching for people with disabilities upon leaving the company at Hello Work but was not successful in all of my about 40 applications.
Recommended by a representative of a group of people with dementia, who I met at a job seminar for caregivers, I visited a meeting of people with dementia in a different area. Many participants seemed to be enjoying themselves, smiling and talking with each other, and seeing them made me wonder why they were smiling, unlike myself who was feeling down.
Wishing to meet and talk with other people with the same disease, I set up a place where people with the disease can meet in my own community.

2019年(59)

My initial diagnosis was Alzheimer's dementia, but I received a new diagnosis of "basal ganglia degeneration of the cerebral cortex."

Joy in life and living

1

Joy that you have given up

Taking a walk

2

Joy that has come to you after onset

Working to care for bamboo groves

3

Joy that has come to you after onset

Going to DAYS BLG! and meeting others with the same disease (dementia)

4

Joy that remains with you even after onset

Going to the cinema to see movies

Something you would like to do in the future

I hope whoever (with dementia) will be smiling.
I want to see my grandchildren's faces.

Challenges in daily living

Physical and mental dysfunctions

Message to the society

About work, I think staying with the company, even with demotion or 10% reduction in wages, etc., and keeping a job would be financially beneficial. I felt that I may not be able to continue my job any longer because my company did not offer any support. If the company had offered me to remain employed until retirement, I would still be working for the company.

I wish I had met people who would support me before I made the decision to leave the company. I wish I had someone I could consult intimately with.

When I kept failing in my job search, I wondered why people would change their attitudes just because I had dementia. I thought there were so many other disabilities, such as mental disabilities and Down's Syndrome.
Even though those people were getting hired, when I told I had Alzheimer during interviews, some interviewers changed their faces. At that time, I could not tell them that I would be able to do the work because I was mentally down. I had lost confidence. What I hated the most was that some companies did not even give me clear results as to whether they would hire me or not.

To the society, people with dementia are still regarded as "unable to tell anything," and I hope this notion will go away. I can do what I can do, and I do not want to be deprived of it. I do not want people to decide what I can do and cannot do just because of the name of the disease.